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  1. #1
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Unhappy Dealing with MS after surgery...

    I know that there are many autoimmune disorders that flare up after any surgery. I'm not even sure if I am having a flare up because of the surgery or if it's because I've been so busy & so stressed that it threw me into a flare. All I know is that I'm completely miserable at this moment and could use some prayers. In a few days, I will be having a home health nurse come to my house to do 3 days worth of IV steroids. 1,000 milligrams each day. In the past, I've had issues with wanting to eat the whole house when on steroids. Thankfully, I won't have the ability to do that but I will still gain some water weight during this process. I don't really care about that really... I just want to feel better.

    The picture I attached is from 12.27.18... we bought our kids movie tickets for Christmas so we went to the movies. I love taking pictures with my kids because they grow so quickly and you just never know when you won't have them anymore. We took this picture and I looked at it yesterday... I actually LOOKED miserable too! I had no idea that I was putting off that vibe at that time. I was just trying to give my kids a good night out. I was trying to make it through our Christmas (we celebrated late because they spent a week at my in laws house). Sitting in the theatre was physically disturbing. I was so restless & uncomfortable. I couldn't feel my feet and so very badly wanted to take my boots off. I can't sit for long periods of time so I had to go to the bathroom twice for a 90 minute movie just so I could move around. Didn't really have to use the bathroom. The lights made me dizzy so I looked like I was intoxicated walking out of there. Thankfully, there was only 2 more families watching that movie and they got up a lot too. I drove my kids to the dentist yesterday. We are still established at our doctors offices that we had prior to buying our house in June so it was a 2 hour drive. By the time we got 45 minutes out, I had to pull over to drive barefoot. I just can't do the shoe thing during a relapse. They feel super tight and I can't feel the pedals. I got home last night and decided I'm not going ANYWHERE unless I absolutely have to. I'm praying they get a nurse here before Thursday. So anyways... that was a long drawn out explanation just for me to say I'm nervous about my first steroid treatment after surgery and how it's going to affect my journey... *sigh*

    I believe 1,000% that you should find at least one positive in every rant. Well, here's 2. I would have to say that it would be that the first one would be that I made it through Christmas. I felt this relapse coming around Thanksgiving and I tried my best to rest when I wasn't busy. The second would be that I was having monthly relapses from 1/2017 to 9/2017 that ended up being biweekly. In 9/2017, I was put on a different medicine that changed all that. So, I'm blessed. One relapse since 9/2017... I'll take it.

    Please pray for me. Thank you!
    Attached Images




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

  2. Gastric Sleeve Surgery With Weight Loss Agents
  3. #2
    Gastric Sleeve Member Aydensmomma's Avatar
    I have had a gastric sleeve.
    Name
    Teri
    Surgery date
    12/30/2014
    Surgeon
    Dr. Shady Macaron
    Join Date
    Jan 2015
    Last Activity
    01-08-2019 10:02 AM
    Location
    CT USA
    Posts
    414
    Said "Thanks" 3 Times
    Was Thanked 282 Times in 184 Posts
    Said "Welcome to Gastric Sleeve" 1,508 Times
    Blog Entries
    71

    Default Re: Dealing with MS after surgery...

    Prayers send Michelle! I hope the steroids make you feel better. I was driving myself crazy with weighing daily when I first sleeved, if your like me I would definitely try not to weigh for a bit, if you gain water weight it will come back off but it might be discouraging and stress you out even more.
    Good luck!
    sleeved 12/30/14 @255lbs Goal 140lbs
    3/3/15- 208lbs 6/14/15- 163lbs
    lost 92lbs in 1st 6mo
    9/10/15- 139 1/5/2016 - 128lbs
    lost 128lbs in 1 year
    4/4/16 - 123lbs 7/4/16 - 129lbs 12/3/16- 130
    still 128lb loss@2 year mark-11lbs below goal
    gained 13lbs by 3 year mark weighing 142lbs
    Gained up to 158 by 3 years 3 months!
    3.5 years back to 142
    hoping to stay between 140lbs-145lbs
    Its been 3.5 years!! If I can do it,
    you can do it!

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  5. #3
    Gastric Sleeve Member Christie13's Avatar
    I have had a gastric sleeve.
    Surgery date
    11/03/2016
    Surgeon
    Dr. Wright
    Join Date
    Nov 2016
    Last Activity
    01-11-2019 10:42 PM
    Posts
    4,759
    Said "Thanks" 878 Times
    Was Thanked 2,707 Times in 2,024 Posts
    Said "Welcome to Gastric Sleeve" 1,295 Times
    Blog Entries
    95

    Default Re: Dealing with MS after surgery...

    Sorry to hear about your relapse. Hoping the steroids make you feel better soon.



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  7. #4
    Gastric Sleeve Member Grammy2s&c's Avatar
    I have not had a gastric sleeve.
    Surgeon
    Dr Anwar
    Join Date
    Jul 2018
    Last Activity
    Yesterday 09:03 PM
    Posts
    100
    Said "Thanks" 42 Times
    Was Thanked 42 Times in 39 Posts
    Said "Welcome to Gastric Sleeve" 34 Times

    Default Re: Dealing with MS after surgery...

    That's a very nice picture. Sorry you have to deal with problems with ms.
    I have pretty bad nerve pain, so I can empathize with the pain, pins and needles. I wish you the best, you look great despite what you are going through. I hope the steroids give you some relief! Happy New Year!

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  9. #5
    Gastric Sleeve Member Sandra3's Avatar
    I have had a gastric sleeve.
    Name
    Sandra
    Surgery date
    01/20/2016
    Surgeon
    Dr W
    Join Date
    Dec 2015
    Last Activity
    01-16-2019 09:08 AM
    Location
    France
    Posts
    1,028
    Said "Thanks" 185 Times
    Was Thanked 744 Times in 554 Posts
    Said "Welcome to Gastric Sleeve" 404 Times
    Blog Entries
    49

    Default Re: Dealing with MS after surgery...

    Hey Michelle,

    I'm sorry you are having a bad time with a relapse.

    Like many autoimmune diseases, there's more people with MS in "cold countries" where there is less sun. Also experiments have shown that someone with MS living the West Indies (sunny all year) who moved to to stay in Europe will be sicker compared to her twin who still lived under the sun all year long. All that to say, after your treatment, if you can, have your vitamin D level checked. Chances are it's low and getting supplements to get you level to an optimum 40 to 45 ng/ml could help your symptoms.

    I just had a blood test last week and my levels got really bad suddenly, was ok until September but now it's really low and I saw many symptoms showing up at the same time. I'm back on higher dosage of D vitamin, it's a cheap supplement, and taking a daily dosage can help better than taking a high dose once a month or every two weeks like some doctors advise.

    Also about the weight gain: I'm in my third year and the first year, taking cortisone for 3 days could make me gain 6 pounds in three days, would take 2 or 3 weeks to lose it. Because the first year I was eating fewer calories.

    Last year I gained ten pounds with two weeks of treatment (cortisone and antibiotics), took me a few months to lose it....today I gained 20 pounds after more than two 1/2 months of really heavy treatment and several issues combined...don't know how long it will take to go back to normal.

    But it will go away!!! At least, the treatment keeps me breathing : gaining weight is just a collateral...

    Stay positive!! get your treatment and deal with the weight issue later. Now it's time to focus on your health. Being more mobile will also help the weight to go down.
    Good luck and take care!


    HW : 150 kgs
    09/02/2014 : 142 /1st apt
    01/20/2016 : 134 /surgery
    01/30/2016 : 130 /1st post-op
    02/27/2016 : 126 /2nd
    04/23/2016 : 118 /3rd
    07/16/2016 : 109 / 4th
    10/01/2016 : 103 /5th
    01/21/2017 : 98 /1 year post-op
    February 2017 : 100 lbs lost
    07/22/2017 : 96
    10/21/2017 : 93
    12/22/2017 : 91
    01/02/2018 : 96!! regain (medication)

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  11. Gastric Sleeve Surgery With Weight Loss Agents
  12. #6
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Default Re: Dealing with MS after surgery...

    Thank y'all for your prayers. Keep them coming. My doctor doesn't do on call so I have to wait til Wednesday to get any treatment. My husband is going to pull out my cane, walker and wheelchair out tomorrow in case I need it. I'm okay in the house but I'll need it for when I take my son to his appointment on Thursday and my daughter to her appointment on Friday. Thankfully, my husband will be off work so he can do the driving. I taught my daughter how to make keto egg nog today. We had our traditional New Years Eve supper tonight so come midnight, we are going to sit at the table and make our traditional 'pigs in a blanket' midnight snack. Trying to spend as much time with them as possible as the steroids make me miserable and I turn into someone who doesn't want to be around herself. Lol. My sister and nephew tested positive for the flu, my husband caught a bug and I'm just trying to stay as healthy as I can. I hope that everyone has a wonderful New Years Eve!




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

  13. #7
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Default Re: Dealing with MS after surgery...

    Quote Originally Posted by Sandra3 View Post
    Hey Michelle,

    I'm sorry you are having a bad time with a relapse.

    Like many autoimmune diseases, there's more people with MS in "cold countries" where there is less sun. Also experiments have shown that someone with MS living the West Indies (sunny all year) who moved to to stay in Europe will be sicker compared to her twin who still lived under the sun all year long. All that to say, after your treatment, if you can, have your vitamin D level checked. Chances are it's low and getting supplements to get you level to an optimum 40 to 45 ng/ml could help your symptoms.

    I just had a blood test last week and my levels got really bad suddenly, was ok until September but now it's really low and I saw many symptoms showing up at the same time. I'm back on higher dosage of D vitamin, it's a cheap supplement, and taking a daily dosage can help better than taking a high dose once a month or every two weeks like some doctors advise.

    Also about the weight gain: I'm in my third year and the first year, taking cortisone for 3 days could make me gain 6 pounds in three days, would take 2 or 3 weeks to lose it. Because the first year I was eating fewer calories.

    Last year I gained ten pounds with two weeks of treatment (cortisone and antibiotics), took me a few months to lose it....today I gained 20 pounds after more than two 1/2 months of really heavy treatment and several issues combined...don't know how long it will take to go back to normal.

    But it will go away!!! At least, the treatment keeps me breathing : gaining weight is just a collateral...

    Stay positive!! get your treatment and deal with the weight issue later. Now it's time to focus on your health. Being more mobile will also help the weight to go down.
    Good luck and take care!
    I get blood work done every 3 months. My vitamin D levels used to be super low all the time but my doctor and I have finally got it regulated. I take 1,000 IU daily. I had to take 5,000 IU daily for 2 months to get it regulated and then drop to 1,000 IU to maintain. I had to have iron infusions for 12 weeks also and then went on iron supplements for a year. Now my iron is fine. I take calcium supplements and vitamin c. I also take garlic supplements. I try to take all natural vitamins and less pharmaceuticals.




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

  14. #8
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Default Re: Dealing with MS after surgery...

    After our night of making pigs in a blanket together....
    Attached Images




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

  15. #9
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Default Re: Dealing with MS after surgery...

    Today was my first day of 1,000 milligrams of steroids. Well, I say today because I haven't been asleep yet. I really mean yesterday. My blood pressure has been through the roof. My sugar has been moderate since I'm on low carb now. Migraines and insomnia have kept me up all night. 2nd infusion in 4 hours. I'm so miserable right now. The heartburn is UNREAL! I was told I wouldn't ever need heartburn meds again after my hiatal hernia removal and to stop taking it. Well, I only have heartburn because of the steroids but I've read no zantac after the sleeve and prilosec isn't a fast acting... I'm dying here. Anybody got any advice?




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

  16. #10
    Gastric Sleeve Member DutchSleeve's Avatar
    Surgery date
    01/03/2017
    Surgeon
    Dr. Pablo Enriquez Valens
    Join Date
    Dec 2016
    Last Activity
    Today 05:02 AM
    Posts
    822
    Said "Thanks" 685 Times
    Was Thanked 654 Times in 434 Posts
    Said "Welcome to Gastric Sleeve" 255 Times
    Blog Entries
    5

    Default Re: Dealing with MS after surgery...

    I wish I knew something to help you Michelle...
    It sounds awful.
    I sure hope you will figure out some sort of relieve very soon.
    English is not my first language, so I may and do make mistakes in my spelling, or say things oddly. Please ask me, if you want any clarifications.



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  18. #11
    Gastric Sleeve Member Sandra3's Avatar
    I have had a gastric sleeve.
    Name
    Sandra
    Surgery date
    01/20/2016
    Surgeon
    Dr W
    Join Date
    Dec 2015
    Last Activity
    01-16-2019 09:08 AM
    Location
    France
    Posts
    1,028
    Said "Thanks" 185 Times
    Was Thanked 744 Times in 554 Posts
    Said "Welcome to Gastric Sleeve" 404 Times
    Blog Entries
    49

    Default Re: Dealing with MS after surgery...

    Try Tums....and cold milk for quick relieve, but you should take a PPI for sure. It could help in a few hours sometimes.

    Cortisone does the same to me, I'm sleepless for months now, my stomach is upside down (but I do have an new hernia so..).

    Take care!


    HW : 150 kgs
    09/02/2014 : 142 /1st apt
    01/20/2016 : 134 /surgery
    01/30/2016 : 130 /1st post-op
    02/27/2016 : 126 /2nd
    04/23/2016 : 118 /3rd
    07/16/2016 : 109 / 4th
    10/01/2016 : 103 /5th
    01/21/2017 : 98 /1 year post-op
    February 2017 : 100 lbs lost
    07/22/2017 : 96
    10/21/2017 : 93
    12/22/2017 : 91
    01/02/2018 : 96!! regain (medication)

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  20. #12
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Default Re: Dealing with MS after surgery...

    I called my surgeon after my infusion today. They told me I could take Prilosec for a week while I'm on the infusions. It has already eased off some but I'm feeling the high blood pressure go back up again. Forgive me if I'm not back for a couple days. I hope all is well with y'all.




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

  21. #13
    Gastric Sleeve Member KiwiGal's Avatar
    I have had a gastric sleeve.
    Name
    Lisa
    Surgery date
    09/04/2017
    Surgeon
    Stephanie Ulmer
    Join Date
    Feb 2018
    Last Activity
    Yesterday 08:42 PM
    Location
    Auckland New Zealand
    Posts
    657
    Said "Thanks" 382 Times
    Was Thanked 417 Times in 332 Posts
    Said "Welcome to Gastric Sleeve" 419 Times
    Blog Entries
    1

    Default Re: Dealing with MS after surgery...

    Hi Michelle

    I'm so sorry that you are having such a miserable time. I wish I could offer something constructive - but I can't. Hopefully you will start to feel better soon.

    What lovely photos of your gorgeous family. I love that you have family traditions. I never did anything like that when I was growing up. It's the little things like that you remember all your life.

    Sending you lots of good wishes.
    Kia Kaha
    (Stay strong)



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  23. #14
    Gastric Sleeve Member Sandra3's Avatar
    I have had a gastric sleeve.
    Name
    Sandra
    Surgery date
    01/20/2016
    Surgeon
    Dr W
    Join Date
    Dec 2015
    Last Activity
    01-16-2019 09:08 AM
    Location
    France
    Posts
    1,028
    Said "Thanks" 185 Times
    Was Thanked 744 Times in 554 Posts
    Said "Welcome to Gastric Sleeve" 404 Times
    Blog Entries
    49

    Default Re: Dealing with MS after surgery...

    Quote Originally Posted by EllisM80 View Post
    I get blood work done every 3 months. My vitamin D levels used to be super low all the time but my doctor and I have finally got it regulated. I take 1,000 IU daily. I had to take 5,000 IU daily for 2 months to get it regulated and then drop to 1,000 IU to maintain. I had to have iron infusions for 12 weeks also and then went on iron supplements for a year. Now my iron is fine. I take calcium supplements and vitamin c. I also take garlic supplements. I try to take all natural vitamins and less pharmaceuticals.
    My levels in D get too low even with mega dosages and 10 000 u per day in between. It only gets better with "real sun" during Summer.

    Iron infusion...had one in September, should have had more but can't with fever and I had a low grade fever since...October! And suplement by mouth seem useless.

    Since July I have blood tests once or twice a month but it's mainly to check my ferritin and infections. D is only checked three times per year (insurance policy).

    I've been taking supplements for year, but was taking a break from my omegas since my stomach was a mess. With the PPI I've been able to take those again (omega 3) and also curcuma, because my joints started to hurt a lot. It did help, but I also did change a few things in my diet to help decrease inflammation. Sometimes it's hard to know what's really helping!! But for sure, when my D is low, I get all cold/flue/viruses possible. Here with the anemia it's been worth than ever, I'm lucky I didn't get pneumonia again!!

    Can wait for Summer!!!

    I hope you will feel better soon!

    Take care!


    HW : 150 kgs
    09/02/2014 : 142 /1st apt
    01/20/2016 : 134 /surgery
    01/30/2016 : 130 /1st post-op
    02/27/2016 : 126 /2nd
    04/23/2016 : 118 /3rd
    07/16/2016 : 109 / 4th
    10/01/2016 : 103 /5th
    01/21/2017 : 98 /1 year post-op
    February 2017 : 100 lbs lost
    07/22/2017 : 96
    10/21/2017 : 93
    12/22/2017 : 91
    01/02/2018 : 96!! regain (medication)

  24. #15
    Gastric Sleeve Member EllisM80's Avatar
    I have had a gastric sleeve.
    Name
    Michelle
    Surgery date
    10/11/2018
    Surgeon
    Dr. Clifford Black
    Join Date
    Nov 2018
    Last Activity
    Yesterday 09:10 AM
    Location
    Valley, Alabama
    Posts
    117
    Said "Thanks" 60 Times
    Was Thanked 53 Times in 34 Posts
    Said "Welcome to Gastric Sleeve" 47 Times

    Default Re: Dealing with MS after surgery...

    Quote Originally Posted by KiwiGal View Post
    Hi Michelle

    I'm so sorry that you are having such a miserable time. I wish I could offer something constructive - but I can't. Hopefully you will start to feel better soon.

    What lovely photos of your gorgeous family. I love that you have family traditions. I never did anything like that when I was growing up. It's the little things like that you remember all your life.

    Sending you lots of good wishes.
    Kia Kaha
    (Stay strong)
    Thank you so much! My kids are my life so I try my best to spend every moment that I'm awake with them... my husband hates pictures but I make it a point to have them as much as I can get them. They are only little for a very short time!




    HW: 315 lbs (2008)
    SW: 255 lbs (10/11/18)
    1 mth post op: 229 -26lbs
    8 weeks post op 213 -42lbs
    3 month post op 197 -58lbs

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