I know that there are many autoimmune disorders that flare up after any surgery. I'm not even sure if I am having a flare up because of the surgery or if it's because I've been so busy & so stressed that it threw me into a flare. All I know is that I'm completely miserable at this moment and could use some prayers. In a few days, I will be having a home health nurse come to my house to do 3 days worth of IV steroids. 1,000 milligrams each day. In the past, I've had issues with wanting to eat the whole house when on steroids. Thankfully, I won't have the ability to do that but I will still gain some water weight during this process. I don't really care about that really... I just want to feel better.
The picture I attached is from 12.27.18... we bought our kids movie tickets for Christmas so we went to the movies. I love taking pictures with my kids because they grow so quickly and you just never know when you won't have them anymore. We took this picture and I looked at it yesterday... I actually LOOKED miserable too! I had no idea that I was putting off that vibe at that time. I was just trying to give my kids a good night out. I was trying to make it through our Christmas (we celebrated late because they spent a week at my in laws house). Sitting in the theatre was physically disturbing. I was so restless & uncomfortable. I couldn't feel my feet and so very badly wanted to take my boots off. I can't sit for long periods of time so I had to go to the bathroom twice for a 90 minute movie just so I could move around. Didn't really have to use the bathroom. The lights made me dizzy so I looked like I was intoxicated walking out of there. Thankfully, there was only 2 more families watching that movie and they got up a lot too. I drove my kids to the dentist yesterday. We are still established at our doctors offices that we had prior to buying our house in June so it was a 2 hour drive. By the time we got 45 minutes out, I had to pull over to drive barefoot. I just can't do the shoe thing during a relapse. They feel super tight and I can't feel the pedals. I got home last night and decided I'm not going ANYWHERE unless I absolutely have to. I'm praying they get a nurse here before Thursday. So anyways... that was a long drawn out explanation just for me to say I'm nervous about my first steroid treatment after surgery and how it's going to affect my journey... *sigh*
I believe 1,000% that you should find at least one positive in every rant. Well, here's 2. I would have to say that it would be that the first one would be that I made it through Christmas. I felt this relapse coming around Thanksgiving and I tried my best to rest when I wasn't busy. The second would be that I was having monthly relapses from 1/2017 to 9/2017 that ended up being biweekly. In 9/2017, I was put on a different medicine that changed all that. So, I'm blessed. One relapse since 9/2017... I'll take it.
Please pray for me. Thank you!
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