Update!
by
, 11-29-2018 at 09:34 AM (1963 Views)
Hello dear friends!
Sorry I've been silent for the past few days, being sick is taking all my energy, that and trying to find doctors to help...time consuming..
Recap...
In October, I found a new gyn surgeon, saw her 10 days ago.
She is really nice, and I can tell she is smart. She figured out something I noticed on my blood test (and no other doctor saw it), but since it was from September, I was not too worried.Two months later I was fine so...why worry?
I have an history of pulmonary embolism, and the blood test they did at the hospital in September was also including the d-dimer, which is a marker of protein (when your blood is clotting). But nobody called me to say it was high. I actually had to wait until the genetic testing was finished and it took two months. Since I was receiving nothing I called the hospital and asked to receive those results...So I got the results in November. But I figured...I'm fine now.
Here we are two weeks ago, after all my asthma drama in the train, I had one full week of asthma attacks everyday, all day, after the train episode. It never happened before.
I had to see the ER doctor, my GP.. got again and again a stronger cortisone medication (spray plus pills), changing treatment for a stronger one etc... I was off work for the entire week, feeling awful.
I started to feel a little better, saw the gyn surgeon.
She is completely against the hysterectomy, understand it could help but told me we have to try the scraping first because it is less invasive. She said the burning (NOVASURE) is not safe because of tumors hiding plus she saw very bad complications. Surgery in that area and with my medical history is from her point of view a high risk that we will take only if we can't stop the hemorrhages with a conservative approach.
So she asked me to have an other exam, a hysteroscopy diagnostic, and meet her again soon.
I was back at work last week thinking, I can finally make plans and organize appointments and work lunches without canceling last minute....hum... wait!
Saturday, since my infection was cleared, I followed my doctor's orders and got a flu shot. He told me to get it asap because it takes two weeks to start working, and he wanted me protected before going to the hospital.
6 hours after the shot I had a fever, tachycardia was back on Sunday.
On Monday, listening to my heart and lungs, my doc was like : " I don't know what it is but you are coughing with clear lungs and you have been coughing like that since your week of asthma, this is weird.." and then I remembered those d-dimer. I told my doc I had doubts, did a blood test on Tuesday and the result Tuesday night was even worth!!
So here ...I started to freak out because since Sunday, my breathing was hurting, like if I had bad aches from the flu, so I was thinking first it was a reaction to the vaccine...until the blood test said something else. It was even higher than September!
I was able to find out a place in Paris to have my lungs scan with contrast for yesterday morning (because in my country side in the middle of nowhere they said they had a space ...in January....are you kidding people??? I did explain that if I had PE before, I couldn't wait...the lady didn't care).
Since my hysteroscopy was already scheduled that afternoon, I was off work anyway.
Well, after waiting in the waiting room wondering how I was going to deal with what was coming next, the radiologist came to invite me in his office, and first started to say : be happy, it's not PE!! (happy!! happy!! and relieved...)
BUT there is a "little" issue.
It's a hiatal hernia (I was like what???no way!!! after a sleeve??). We spoke for a few minutes, he asked a lot of questions about my medical history and the past weeks.
The radiologist thinks that since I always had reflux (even before the sleeve) but it got worth post-sleeve, the muscle in the diaphragm area was already weak.
And one week of non stop asthma put a lot of pressure on my abdomen and pushed my stomach...into my lungs cavity....(I didn't even know that kind of thing could happen!!) so it's why my breezing is bad. My lungs don't have enough space..
He told me that diet could help to contain the reflux, I did explain I was already following a "low acid" diet because I stopped the PPI a while ago, and the reflux was not an issue, the breezing was the main concern. So he said to see a surgeon asap, because if my asthma was coming back, it could get much worth.
Also because I had several pregnancies, my stomach was more mobile than a man for example...so with more asthma, more of my stomach could go into the chest cavity (yak..) the main issue is that it could really compromise badly my breezing.
So....on Tuesday, I will first see my gyn surgeon, then my new bariatric/general surgeon...I'm feeling like I just turned one hundred years old...
My husband is devastated. I had to take on me and say positive things during dinner last night, even if I was just so tired and kind of mad. Couldn't breeze well and my heart was still racing like crazy..it never stopped since July....
Because after all, I did have excellent news, no cancer on my uterus, the hysteroscopy was painful but I'm cleared! And no PE is also something in all that turmoil, I told my husband he needed to understand that it could have been much much worth...
Today I had to go find my bigger pants/suits, because indeed all that cortisone made me gain weight like crazy again and I was told to wear lose clothing so I picked one size bigger (and I'm avoiding the scale right now, can't deal with that on top of all the other issues) but I know it's more than 5 kgs...I must say I will deal with that when my health is better.
Plus I'm eating like usual, and don't feel like getting into counting calories and going very low carbs right now like I did last time, it will have to wait for when I can breeze better...
Sleeping sitting...trying to have liquid meals, soups and more soups. Non acidic yogurts..yummy!!
What a week!!
Hopefully next week will bring better news, or at least solutions to my crazy symptoms!!