Feeling like a broken doll...
by
, 11-09-2018 at 04:38 PM (2141 Views)
Hello friends!!
So update on my status: I'm still exhausted! and still sick...
Little recap : had reconstructive surgery in July (tumor removal and arm lift) started to have cardiac symptoms a few days later. Long story short, several doctors, I finally found a professor in hematology to work on my case on September 10, got to see a gyn the same day and do many different exams.
I just got most of the blood tests results ( some of them being genetic testing it took a long time) and there is several abnormalities but lucky nothing genetic.
Anemia is there and it would have been really bad without the iron infusion I had on 9/13. But since that day,I had several infections, I'm on my 3rd round of antibiotics since October, started again high dosage of cortisone yesterday because my asthma has been out of control. I had two bad attacks on the train on Wednesday, it got so bad passengers ask the train supervisor to go check on me! I had to explain I had asthma and was taking medication, it takes some time to quick in, but I would know if I needed medics...no worries! that's when things like that happen, you know people around freak out!
When I'm that sick I can't have an iron infusion because I have a high risk of allergy, and can't get it when being sick. So my ferritin level is falling a lot since mid October, and I'm almost under the minimum again.
I also had an MRI of my pelvic area two weeks ago and it confirmed the previous diagnostic, so now the question is about having or not an hysterectomy. And the chemical menopause is now out of question, hormonal treatment made me really sick...again no a surprise....
Must say I'm stressed out...an other surgery after July's fiasco is just too much in such a short period of time but what to do???
The clock is ticking, if I want to be able to go overseas again, I need to be in shape and departure is planned for the Summer...training during Spring etc...tic toc tic toc..
I will see an other surgeon on 11/19 to have a second opinion, apparently there is other options that are less invasive (a kind of DNC or an other method who's like burning the inside), but that might not stop completely the hemorrhages...and since my boat is already shaking, one doc told me that the MRI might not show everything and it could hide C tumors so he did recommend strongly surgery (oh my gosh!!).
Anyway, the highlight of the week was to know that I had no genetic disease (I mean...not an extra one) but I also tried for the first time osteopathy and it did help with a few pains and even my breathing!!
Tomorrow I'm taking my youngest to see if it can help her too (weak knees, that's from my husband's side, she has been wearing ortho soles in her shoes but that's still not enough).
I'm glad I took a higher premium with better coverage this Fall, because those endless stories are costing a lot and I'm lucky to have a good national insurance, but I discovered our system got worth those past years while we were away, now if you don't want to wait three months, you just go private and pay more...my new premium coverage will give me a better refund on the part the national insurance doesn't pay...since July, all that money could have paid for a really nice trip on a sunny beach ....being sick does cost more those days...so much for the "perfect heath care system in France"!! (and I don't pay less taxes!! pretty much the contrary! argh!)