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Sandra3

Iron infusion / pre-cancerous tumors

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My afternoon today at the hospital was really fruitful! My infusion went well, almost no side effect besides some nausea. The staff was amazing.

The gyn decided to put me in chemical menopause since my iron level is just too complicated to manage and obviously my hemorrhages wont stop for a while so it will never get better without help.

I'm a little scared of what will happen with the medication...but one thing at a time...I will try for three months and see the specialist and discuss the findings/side effects.....they know I'm sensitive to many medications, especially everything dealing with hormones...

So on an other subject, the first biopsies for the tumors were negative pre op, but the analyze post op came positive. The samples were sent back for more tests, but it is still positive.
Apparently, nothing to worry about at that stage, it is pre-cancerous...but still, the big C!!

I was having mixed feelings post op, so many complications and pain, was it worth it to have the surgery??? I had moments of doubt... Of course my skin won't get stuck in sleeves any more, that was so painful. And I had to get ride of those tumors since I was advised not to keep those more than ten years.

But now with the confirmation that those tumors had to be removed for a very good reason, and that I couldn't wait any longer, now comes the very bad news that I will have more surgeries....for sure...and "soon"...

But one fire at a time! today, we fixed the big issue with iron: may be for good!!
I was told several years ago that with my multiple allergies it was too risky to have iron infusion. I'm glad the prof in hematology didn't agree...

After only five minutes of the infusion, I could feel my breezing was already better : I didn't care about being nauseous, more oxygen was reaching my body, it did feel good, that was a good day!

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Comments

  1. KiwiGal's Avatar
    I'm glad that things are starting to work out for you. What a lot you have had to contend with.
    Best wishes for a good recovery.
  2. Ann2's Avatar
    Ditto what I just posted on your other thread. I'm glad you're getting good information and good advice and treatment.

    Ann
  3. Sandra3's Avatar
    Quote Originally Posted by KiwiGal
    I'm glad that things are starting to work out for you. What a lot you have had to contend with.
    Best wishes for a good recovery.
    Thank you so much!! it's been a long journey since the surgery in July...hopefully I will be ok for a few months...
  4. Sandra3's Avatar
    Quote Originally Posted by Ann2
    Ditto what I just posted on your other thread. I'm glad you're getting good information and good advice and treatment.

    Ann
    Thank you Ann!!

    I will never again have surgery during Summer unless it's an emergency...

    But I do have to plan the removal of the other tumors (preferably before next Summer since we are supposed to move again). One in my back is a big issue...I have to find the right surgeon (neurologist)....the other tumors in my tummy were supposed to go away with the tummy tuck...I must say I'm getting cold feet...but knowing now there is a pressing time limit issue, it's getting complicated....
  5. DutchSleeve's Avatar
    That is a lot to deal with!
    But it sounds like you are taking charge.
    Good for you!
    Breathe in, breathe out.
    Yes, it ís complicated, but you will sort it out.
    Like you said: one fire at the time.
    When can you leave the hospital?
  6. Stacey03's Avatar
    Gosh poor you, that sounds like a lot to deal with but it sounds like you are on top of it all. Very best wishes to you :-)
  7. Sandra3's Avatar
    It did feel like it was taking for ever and no solution was offered. I did learn that being sick in Summer is getting less good doctors available...
    I left the hospital on Thursday evening...Back at work on Monday!
  8. Sandra3's Avatar
    Quote Originally Posted by Stacey03
    Gosh poor you, that sounds like a lot to deal with but it sounds like you are on top of it all. Very best wishes to you :-)
    Thanks Stacy! I did feel a little overwhelmed and since I was living overseas for so long, there is also new procedures in place I didn't even know and lost money because of it (red tape everywhere...) it feels also that our medical system is decreasing in quality...

    I actually got lucky that someone cancelled an appointment with the very well known competent professor in hematology, or I had to wait until November to see her!

    Anyway...my friends...think well before going for reconstruction/plastic...I know I couldn't predict most of the mess but I should have waited for January...the good doctors are at work during winter!
  9. nlee's Avatar
    Glad you're feeling better with the iron infusions. I have those periodically also due to my chronic anemia. It usually takes me a few infusions to feel any benefit though, but it's worth it to be able to breathe and not have the muscle fatigue. Best wishes to you!