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  1. Sandra3's Avatar
    Quote Originally Posted by Katrina
    I never did lose the weight I gained from steroids. I went from 102 to 115 in three months, and have never been able to get below 112 since. They didn't help me either, so boo to steroids for me. But you, Sandra, take them if they're helping your lungs. You need those lungs! Get better!
    It did help my lungs, but gaining that much is not helping my joints. My knees are not doing good..

    So far I never gained that much since the sleeve, so it's hard to know what will happen and how long it will take to go away.
    I had to take cortisone during one or two weeks so far since the sleeve (May 2016 and January 2018) but I was eating a little less at that time, plus the treatment was short.

    Before the sleeve I had strong and long treatment, gained even more....took me months to lose it. I'm hoping, since I still have restriction, that it will be easier to lose. We'll see how it goes...
  2. Sandra3's Avatar
    Quote Originally Posted by AnnieG
    Steroids are good drugs for short term, but I think everyone's gain and loss with them is different. For me its in the face, feet and fingers. I was on 10 days, and was up about 5-7 lbs. After being off 2 weeks, back to normal.
    For asthma a treatment can be long. My face is puffy for sure. But I gained everywhere since August. I was on and off cortisone since October, but my treatment has been heavy for one month non stop now.

    When asthma is out of control there's not many solutions unfortunately...

    In 2016 I had a one week treatment, gained like 7 or 8 pounds, lost it in like 3 weeks. But I was just 6 months post-op and eating nothing.
    Now I eat more in quantity, but also the treatment is long, first time it has ever been that long actually.
    I hope it will go away in 2 or 3 months, will watch my carb intake to help!
  3. Katrina's Avatar
    I never did lose the weight I gained from steroids. I went from 102 to 115 in three months, and have never been able to get below 112 since. They didn't help me either, so boo to steroids for me. But you, Sandra, take them if they're helping your lungs. You need those lungs! Get better!
  4. AnnieG's Avatar
    Steroids are good drugs for short term, but I think everyone's gain and loss with them is different. For me its in the face, feet and fingers. I was on 10 days, and was up about 5-7 lbs. After being off 2 weeks, back to normal.
  5. Leslieann's Avatar
    Get well Sandra, get strong and then you'll be able to attack the weight issue. You're a strong person, you can do it!!
  6. Sandra3's Avatar
    Quote Originally Posted by AnnieG
    I have Lynch Syndrome -- and celiac disease. But other than the things that would kill me (lol), I think moderation in everything except simple sugars is good. Those I avoid.

    I hope you feel better! Food is indeed medicine!
    I've been focusing on my diet for over 20 years, the main goal was to avoid "obesity contagion". I did get lucky on that part since none of my kid got obese when living at home and the youngest who's showing signs she has my "bad genes" (she did gained weight with medication at 8 years old, like me) has been healthy so far. She does eat lots of veggies, and does complain about it, like all kids.

    My older kid gained a lot in college, and kept the weight with bad new habits she got away from home, her partner is a chef and they eat only carbs and cheese. No surprise here they are getting bigger and bigger each year..and sicker.....it's painful to watch.

    But anyway, I'm lucky I don't have celiac, but have many food allergies/intolerance. AND at the same time I have to monitor my iron intake (in food) since supplements alone don't help enough.

    What's weird is that with the sleeve, a few things changed in a good way, for example I've been able to eat raw tomatoes post-sleeve, it's not making me sick any more. Well...was not...with all that cortisone I have to be careful right now with veggies because I did have some major issues those past weeks.

    Eating became so complicated with the medication messing up my guts! I was hoping the new "plan" would help, but it seems it's getting everything worth...
  7. Sandra3's Avatar
    Quote Originally Posted by Christie13
    I can tell you the diary would be the hardest part for me as well. I have milk every day and cheese almost every day. But my day starts with a big cappuccino. I could do the rest but milk and cheese....gah. Too hard. BUT...when it is something that can help your health it would be worth the sacrifice. Good luck.
    So far it's been almost impossible to follow those new recommendations 100%!! it goes against my palate by also my IBS had been back with all those medications and there's so many things I can't eat right now that adding that new diet and follow it would let me with nothing to eat...I did try...but raw veggies got my IBS a quick, I switched for steamed...same thing. I mix it with rice...hum...I did decrease gluten a lot...at least that's something..
  8. Sandra3's Avatar
    Quote Originally Posted by AnnieG
    Prayers for a complete resolution of all you health issues, and a healthy and memorable new year. You've been through quite enough!
    Thank you for your kindness Annie!!
  9. Sandra3's Avatar
    Quote Originally Posted by DutchSleeve

    So, here's a project for 2019: first get your health back.
    Thank you for your support Simonne!!Health is my first priority for sure!!

    I'm really having big hopes in my new medical team and can't wait to be done with my full week at the hospital. I know it's not going to be fun but it's much needed, and they might be able to help on many fronts, I'm interested by finding a solution for those mega huge deficiencies that nothing bit. EVER!!

    One of the doctor who called me to prepare my stay is a nutritionist but also specialize in hormones. She said they will focus part of the tests on those issues because it does impact my health a lot.
    My ferritin level dropped 20 points again between Nov and Dec. Of course I know why but with all the supplements I take plus my special diet (blood sausage, lentils, etc etc.. each week) it should not be.

    Anyway : thanks for your message Simonne!! I will keep you posted!
  10. AnnieG's Avatar
    I have Lynch Syndrome -- and celiac disease. But other than the things that would kill me (lol), I think moderation in everything except simple sugars is good. Those I avoid.

    I hope you feel better! Food is indeed medicine!
  11. AnnieG's Avatar
    Prayers for a complete resolution of all you health issues, and a healthy and memorable new year. You've been through quite enough!
  12. DutchSleeve's Avatar
    I'm sorry to hear you are struggling...
    But you are one tough cookie!
    You can and you will get through this, but for the moment, it's no fun.
    I'll keep my fingers crossed and I sure hope your medication can be altered.
    But for now you need it.
    I won't say your health is more important than your weight right now, because you know that.
    Darn... I said it...
    But knowing that does not make it any easier...

    So, here's a project for 2019: first get your health back.
    Then go for it and hit that goal weight.
    You know you can do that.

    I'l send good vibes your way for your hospital stay.
    And I wish you a very good and healthy 2019!
  13. Sandra3's Avatar
    Thanks for your message dear Christie!! I wish you also the best for 2019!!

    For sure the weight gain is stressful, but facing the truth was urgent, especially during this time of the year, with so many parties and good food around. It does keep me grounded, even if knowing is painful, it's almost a one year set back...I don't think twice before saying "no thank you" to any treats...indeed I'm stressed on so many levels it's not helping to add the extra weight on the list since I didn't even reach my goal yet...anyway...I hope the docs will help in January!
  14. Christie13's Avatar
    I can tell you the diary would be the hardest part for me as well. I have milk every day and cheese almost every day. But my day starts with a big cappuccino. I could do the rest but milk and cheese....gah. Too hard. BUT...when it is something that can help your health it would be worth the sacrifice. Good luck.
  15. Christie13's Avatar
    Hang in there Sandra. Just try to relax as I am sure the added stress of everything is not helping at all. I know it sucks to gain but unfortunately some medications do that to us. We want you to get healthy so that you can get back on track. Big hugs. Wishing you a Happy New Year and will keep you in my thoughts and prayers for healthy healing.
  16. Sandra3's Avatar
    Editing here : I was reading one paper published by the author, and to my horror, I was reading he actually advise to eat raw MEAT!!! argh!!! not for me!!! will drive around that point...

    So far I decreased a lot dairy and gluten and one of my joint is less painful...but may be it's just a coincidence and the others things I'm' doing...who knows...
  17. Sandra3's Avatar
    Quote Originally Posted by Ann2
    Merry Christmas, Sandra. You're all set!

    Ann
    Merry Christmas Ann!!

    yes, the kids are home, chocolate too!!all set!!
  18. Sandra3's Avatar
    Quote Originally Posted by DutchSleeve
    You still have a couple of days before Christmas...
    I'll keep my fingers crossed for you!
    I hope you feel well enough to celebrate these days with your family.

    Not much Christmas celebrations in here in Morocco.
    I do have a small Xmas decoration in our RV, so still a little Christmas-ish.
    Happy Holidays to you!
    Thank you Simonne!

    In need of good waves here since one box was stuck for days, was finally supposed to get home yesterday, and got stuck again. So now it's Monday or it will be delivered too late "after Christmas"
    I didn't get many presents this year, so half is in there...

    My breezing is getting better for sure, seems the pneumologist gave me the right medications. And my sharp pain (hernia area) is also decreasing since I'm coughing less than last week.

    But I can see I'm getting bigger by the minute with all that cortisone in pills and spray, and Friday night woke up during the(short) night with sharp pain in my left foot (big toe area), it's not going away and hurt a lot when I stand, seems it's arthritis (or too much pressure from weight gain?). Really swollen and painful and I didn't even hurt myself so...Again a new thing! Argh!!!

    Of course I couldn't see a doctor on Saturday, all clinics are closed. They will reopen on the 26...no point in going to the ER during that time of the year it's full with "all the crazies" those poor doctors have already a full plate.

    So my helpers (kids and hubby) will be my sous-chef in the kitchen, we should be able to have a low key dinner without too much standing.

    For 15 years we used to travel during that time of the year, I would rather be on a sunny beach...who knows...may be next year!
    Our last Xmas overseas was in Osaka (2016), I did bring little presents and a mini tree (like 5 inches) in my tiny suitcase, Xmas was nowhere in the streets....

    But today at home there's a few lights in the entrance (one of the kid got it), but not even a tree or stockings in the living room, I'm too tired to take care of those. I told the kids they could go get the boxes in the suitcase closet (third floor, no way I can do it) but so far no one seem to care!

    Enjoy your Moroccan Xmas celebration!! XX
  19. Ann2's Avatar
    Merry Christmas, Sandra. You're all set!

    Ann
  20. DutchSleeve's Avatar
    You still have a couple of days before Christmas...
    I'll keep my fingers crossed for you!
    I hope you feel well enough to celebrate these days with your family.

    Not much Christmas celebrations in here in Morocco.
    I do have a small Xmas decoration in our RV, so still a little Christmas-ish.
    Happy Holidays to you!
  21. Sandra3's Avatar
    Quote Originally Posted by KiwiGal
    Thank goodness you finally have a medical team on your side who can help and support you.
    Please don't worry about what number is on the scale - in fact don't even get on the scale!
    The most important thing is to concentrate on getting well and feeling better. I'm sure everything else will fall back into place one that happens.
    I wish you all the best x
    Thank you for your message!!
    I'm so glad I found a team!!

    But I was reading an article about anemia in a medical journal this week end, what happened since August could have been prevented if I had better doctors. I just got all the complications they described...

    Basically when anemia is really important, it is especially bad for people who have my kind of medical history (asthma, past pneumonia, allergies etc) it's likely to target the lungs, give infections etc and make worth everything.

    I'm just surprised, reading that, to see that my doctors didn't ask me to stay home after my first issue, because keeping on working could only make things worth.
    And the hematologist should have requested several iron infusions, just one was not enough.

    Anyway, we can't change the past, but for sure I will have my ferritin level tested often from now on..
  22. KiwiGal's Avatar
    Thank goodness you finally have a medical team on your side who can help and support you.
    Please don't worry about what number is on the scale - in fact don't even get on the scale!
    The most important thing is to concentrate on getting well and feeling better. I'm sure everything else will fall back into place one that happens.
    I wish you all the best x
  23. Sandra3's Avatar
    Quote Originally Posted by Christie13
    Oh Sandra that really sucks. I hope your next doctor is better. Nothing worse than a shitty doctor. I had that issue before with my doctor at the base in Japan. The blood pressure meds she put me on gave me a constant dry cough and weren't even lowering my blood pressure. When I asked for something else she refused and wanted me to take a second type of medication. So I got pissed and stopped taking them. I just didn't go to the doctor anymore. Now my new doctor here is absolutely wonderful. He listens to everything and I am so thankful for him. (Turns out that I was allergic to the first type of medications!!)
    Please let us know how it goes with the new doctor. I will be sending out positive thoughts for you. Big hugs Sandra!
    Thank you dear Christie!

    So far I think my best doctor was the one in Taiwan but this new one seems ok but I will know more during next consult. But the team looks great for sure!

    I did notice many times that doctors don't know much about medication or its side effects. That's why I always recheck with my pharmacist, the one in France knows me well and she agreed with me last time that my GP kept on prescribing the wrong medication. She actually switched it and we didn't even tell him. He has no clue..

    I'm really glad that you have a great doctor. I don't think I have found the equivalent of my TW doctor so far...miss him a lot...he was so nice...
  24. Christie13's Avatar
    Oh Sandra that really sucks. I hope your next doctor is better. Nothing worse than a shitty doctor. I had that issue before with my doctor at the base in Japan. The blood pressure meds she put me on gave me a constant dry cough and weren't even lowering my blood pressure. When I asked for something else she refused and wanted me to take a second type of medication. So I got pissed and stopped taking them. I just didn't go to the doctor anymore. Now my new doctor here is absolutely wonderful. He listens to everything and I am so thankful for him. (Turns out that I was allergic to the first type of medications!!)
    Please let us know how it goes with the new doctor. I will be sending out positive thoughts for you. Big hugs Sandra!
  25. Sandra3's Avatar
    Quote Originally Posted by DutchSleeve
    I'll keep my fingers crossed!
    Good luck today!

    It actually makes me really mad, that they don't seem to understand that a stomach should NOT be in the chest cavity, I mean, really?
    Come on, isn't that basic knowledge?
    Like: all organs should be where they belong?
    It really p*sses me off, sorry for the rant...
    Thank you Simonne for your message!! and your support!!and the rant!! (you read my mind!!)
    It's a good version of how I feel after all those issues, week after week....I'm so so mad!! and my husband is so upset too...it's like I'm going to all hospitals in Paris...fishing for the unknown...and coming back home with nothing but pain and disappointment..

    At least yesterday was a good day, I think I found my surgeon/team/hospital!!
    It's not going to be fast treatment unfortunately but since my lungs need to heal anyway, we are stuck...I will write a new blog this morning with more details.
    Big hugs!
  26. DutchSleeve's Avatar
    I'll keep my fingers crossed!
    Good luck today!

    It actually makes me really mad, that they don't seem to understand that a stomach should NOT be in the chest cavity, I mean, really?
    Come on, isn't that basic knowledge?
    Like: all organs should be where they belong?
    It really p*sses me off, sorry for the rant...
  27. Sandra3's Avatar
    Quote Originally Posted by DutchSleeve
    This really is a neverending story, it seems.
    I am so sorry you have to go through all of this medical abuse.
    But I know, I had the "pleasure" to visit a doctor in France on one of our trips.
    Appointment wise, I am not sure that it is better in the Netherlands, I know it is defenitely beter in my hospital in Spain, but that is a private clinic.
    I sure hope things will speed up for you, this is so not good...
    Hugs and kisses!

    And yes, I also understand the gilets jaune...
    Thank you Simonne!!

    I had better care in Taiwan, no kidding! it was a public hospital, and to see the knee specialist the waiting was one month, but at least for exams everything was fast,usually the same day and done at the same place (and the staff was always smiling and lovely, even if my Chinese was bad). I actually emailed my surgeon he replied like two hours later with helpful suggestions. And when I had issues, I was always able to see him the same day or the following day...I miss having a good doctor..

    I've been in a medical maze since August and it's been really long, I know I'm losing patience, so far my gyn surgeon is the only good doctor I found.. I made an appointment with a psychiatrist specialized in obesity, because I think his team could actually help on the long run, it's the only hospital (semi private) which has a complete team devoted to obesity and apparently it's the best in Paris. So we'll see how it goes tomorrow, but I've got a plan C if it's not right surgeon again...
  28. Sandra3's Avatar
    Quote Originally Posted by sraebaer
    Sorry you are going through this. We complain in the states, but we do get to see doctors right away for any issues. Hubby had skin cancer on his head, and our friend from Canada said that would have been at least a 2 month wait to see a doctor in his country. Seriously? Someone could die in that time! (Hubby is fine, thank God.)

    Good luck working everything out. It is good they want to do testing before operating to be safe!
    Thank you! Luck is much needed!

    Canada has more waiting time that we do, but what really puzzle me since August is how no specialist can just send me to his colleagues in the same hospital. Before that's how it was done.
    Now it's just like each department is separate, nobody working with other specialists from the same hospital! how weird!

    So to be able to get somewhere I'm "running"(limping actually) all over Paris and do most of my exams in private, but for safety issue, I need to have surgery in the public hospitals, so at some point I still have to deal with the waiting.

    Glass half full : people with no money get treated no matter what, they just wait longer. And when you are underprivileged you can actually get implants "for free" when even with my good premium I would pay probably at least 1000 for just one tooth...
    Anyway...at least today I got some answers, my lungs are damaged but that should be better with treatment, in three months....the surgeons might decide to postpone all surgeries in the mean time...
  29. DutchSleeve's Avatar
    This really is a neverending story, it seems.
    I am so sorry you have to go through all of this medical abuse.
    But I know, I had the "pleasure" to visit a doctor in France on one of our trips.
    Appointment wise, I am not sure that it is better in the Netherlands, I know it is defenitely beter in my hospital in Spain, but that is a private clinic.
    I sure hope things will speed up for you, this is so not good...
    Hugs and kisses!

    And yes, I also understand the gilets jaune...
  30. sraebaer's Avatar
    Sorry you are going through this. We complain in the states, but we do get to see doctors right away for any issues. Hubby had skin cancer on his head, and our friend from Canada said that would have been at least a 2 month wait to see a doctor in his country. Seriously? Someone could die in that time! (Hubby is fine, thank God.)

    Good luck working everything out. It is good they want to do testing before operating to be safe!
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