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  1. Sandra3's Avatar
    Quote Originally Posted by Christie13
    Ugh that stinks. So possibly the bypass could work but it could also trigger the IBS. Hoping things work out. Hugs.
    The bypass would stop the reflux "for sure" it almost 100% (I saw numbers from 95 to 98%). That's why surgeons prefer that safer way.

    But they still need to repair the hiatus even with a bypass, because you can also get a hernia with a bypass.And my diaphragm is obviously damaged but they won't know how bad until they open.

    I had no idea that a sleeve could get any stomach surgery so complicated post-sleeve.

    Since my IBS was so important before the sleeve, is under control since the sleeve (docs can't actually really explain why, weird!) several specialist agree that a bypass would trigger for sure the IBS.

    I really did consider the bypass at some point, but the idea of solving a huge problem and create two others (IBS but also more deficiencies) is just not worth it..

    The whole thing does stink real bad....
  2. Christie13's Avatar
    Quote Originally Posted by Sandra3
    I've known since January that my reflux is the highest possible.
    Saw several specialists about it.
    It's true that the way to get a 100% result would be going for a bypass.

    But since I also had a really bad IBS before the sleeve, two specialists (gastro) did confirm a bypass would start the IBS again.
    I can't even consider that option, until we try the repair first. The repair could work and I would still be free of the awful IBS.

    My surgeon in Taipei did say since the beginning in November that a repair could be successful if the reflux started with the strong hernia (my case) and if the hernia was big (superior to 3 cms) and my hernia is 4 cms.
    So I have the profil for a repair. That wouldn't trigger my IBS.
    My surgeon did say a bypass would be "safer" since we would know for sure the reflux would be gone but between my reflux and deficiencies..it's taking a lot of risks to fix the reflux but get more issues after...

    But the repair is technically really difficult, and my last surgeon is Paris said yes I'll do it in January, then started to find excuses. I just think he is not good enough and I'm looking for an other surgeon, or if nothing work, I will go back to Taipei, spend a fortune, but get the real good care I need from a surgeon I trust...

    It's been so complicated!!
    Ugh that stinks. So possibly the bypass could work but it could also trigger the IBS. Hoping things work out. Hugs.
  3. Sandra3's Avatar
    Quote Originally Posted by Christie13
    I am so sorry Sandra. You have been through so much. I will pray you find something that works. I have no advice to give as I have not had these issues. Hugs my dear.
    Thank you my dear Christie!
    It feels like I tried everything but nothing is working. I just hope that surgery will be really helping. I know it's not always successful...
    Big hugs!
  4. Sandra3's Avatar
    Quote Originally Posted by Katrina
    Sorry to hear you weren't able to come off the ppi. I've tried a couple of times over the last 4 years to come off. No luck for me either. I made it 5 days once, and thought I was going to die. I haven't tried again in a long time because even if I'm late by a couple of hours, I pay for it with pain. Reflux is rough! Hope you're able to find some relief that is suitable for you.
    I'm sorry were are both in the "bad same boat" with the PPI!
    I was able to stop it completely when I was 13 months post op, for more than 18 months
    https://www.gastricsleeve.com/forum/entry.php?b=30523

    but now, with the hiatal hernia that popped out in November after non-stop asthma, cards are different!
    This time...it seems I can't...and reflux can show up even with the PPI, which was never the case before the hernia during the first year post-op...
    I think that the only relief will be coming from the repair surgery...but when is the big question mark..
  5. Christie13's Avatar
    I am so sorry Sandra. You have been through so much. I will pray you find something that works. I have no advice to give as I have not had these issues. Hugs my dear.
  6. Katrina's Avatar
    Sorry to hear you weren't able to come off the ppi. I've tried a couple of times over the last 4 years to come off. No luck for me either. I made it 5 days once, and thought I was going to die. I haven't tried again in a long time because even if I'm late by a couple of hours, I pay for it with pain. Reflux is rough! Hope you're able to find some relief that is suitable for you.
  7. Sandra3's Avatar
    Quote Originally Posted by Christie13
    I hate to say this Sandra but you may be better off converting to a full bypass. People who have such intense acid after a sleeve are usually recommended to convert to bypass. It helps stop the reflux. Hoping you find relief for your reflux and also keep losing weight.
    I've known since January that my reflux is the highest possible.
    Saw several specialists about it.
    It's true that the way to get a 100% result would be going for a bypass.

    But since I also had a really bad IBS before the sleeve, two specialists (gastro) did confirm a bypass would start the IBS again.
    I can't even consider that option, until we try the repair first. The repair could work and I would still be free of the awful IBS.

    My surgeon in Taipei did say since the beginning in November that a repair could be successful if the reflux started with the strong hernia (my case) and if the hernia was big (superior to 3 cms) and my hernia is 4 cms.
    So I have the profil for a repair. That wouldn't trigger my IBS.
    My surgeon did say a bypass would be "safer" since we would know for sure the reflux would be gone but between my reflux and deficiencies..it's taking a lot of risks to fix the reflux but get more issues after...

    But the repair is technically really difficult, and my last surgeon is Paris said yes I'll do it in January, then started to find excuses. I just think he is not good enough and I'm looking for an other surgeon, or if nothing work, I will go back to Taipei, spend a fortune, but get the real good care I need from a surgeon I trust...

    It's been so complicated!!
  8. Sandra3's Avatar
    Quote Originally Posted by Dutchie
    That is certainly good news!
    I am so happy for you.
    Keep it up!
    Thanks Simonne!
    The very good news is I know why I was not losing after I stopped the prednisone in February!!
    Even If I have to go back to the PPI until I get the surgery, at least I know now...it will come off when I stop the PPI!!
  9. Christie13's Avatar
    I hate to say this Sandra but you may be better off converting to a full bypass. People who have such intense acid after a sleeve are usually recommended to convert to bypass. It helps stop the reflux. Hoping you find relief for your reflux and also keep losing weight.
  10. Dutchie's Avatar
    That is certainly good news!
    I am so happy for you.
    Keep it up!
  11. Sandra3's Avatar
    Quote Originally Posted by Christie13
    Oh Sandra that really stinks. To have doctors be so incompetent is really awful. I am most successful with weight loss when I eat lower carb BUT I do a modified low carb. I am really only worried about avoiding sugars, flours, fruits, and really starchy/carby vegetables like carrots and potatoes. I do not worry about regular vegetables. I also do not worry about milk carbs. That seems to work really well for me. Just a thought. It might work for you. I hope you find a good surgeon soon who can help you. Sending you really big hugs my friend.
    Thank you my friend!!
    I've been following a moderate low carb for years, since during my long 14 months diet I discovered that if I was eating more than 100gr per day, whatever the calories, I wouldn't lose.
    Since the sleeve I was generally around 60gr per day, and did eat once a week a piece of potatoe or carrot, usually grilled or in a soup.
    I can't have fruit (except blueberry or watermelon)for months so that point is easy. When we lived in Asia I was sometimes having little rice here and there because....no other choice! but bread and pasta, I avoid it.
    Reading all books from Dr Fung plus the affect really low carbs can have to help with joint pain...I'm giving it a try...we'll see...so far in 3 days I got surprising results...
    Big hugs!!! take care!
  12. Sandra3's Avatar
    Quote Originally Posted by KiwiGal
    Hey Sandra
    You have had an awful lot to contend with - and still have!
    It's really hard at times like this to see the light at the end of the tunnel.
    It seems though that you are trying things that are working which is fabulous.
    I wish I had something practical to offer but I don't so I will say hang in there, stay strong and we are always here for you to rant to
    xxx
    Hi Lisa!
    Thank you so much for your message and support! that's already a lot!!
    take care!
    XXX
  13. Christie13's Avatar
    Oh Sandra that really stinks. To have doctors be so incompetent is really awful. I am most successful with weight loss when I eat lower carb BUT I do a modified low carb. I am really only worried about avoiding sugars, flours, fruits, and really starchy/carby vegetables like carrots and potatoes. I do not worry about regular vegetables. I also do not worry about milk carbs. That seems to work really well for me. Just a thought. It might work for you. I hope you find a good surgeon soon who can help you. Sending you really big hugs my friend.
  14. KiwiGal's Avatar
    Hey Sandra
    You have had an awful lot to contend with - and still have!
    It's really hard at times like this to see the light at the end of the tunnel.
    It seems though that you are trying things that are working which is fabulous.
    I wish I had something practical to offer but I don't so I will say hang in there, stay strong and we are always here for you to rant to
    xxx
  15. Christie13's Avatar
    Oh no. Tummy bugs stink. I haven't had one in years but I think I have a higher tolerance to them because when I was 7 and living in Turkey I got Hepatitis A. Since then whenever I have been with people who have gotten stomach bugs or food poisoning I am usually immune to it.
  16. Sandra3's Avatar
    Quote Originally Posted by Christie13
    Oh my goodness. That really stinks. I only had minor issues with raw veggies in the beginning. Now I can pretty much eat anything with no issues. I only have issues if I overeat.
    I never overeat, but eating something my stomach doesn't like can have the same "go back where you came from" effect. Argh...

    Seems like there is a stomach bugs going around. I might have a weird version of it. Since I have no fever I don't worry too much, but today was a white rice and yogurt day (so much for my low carb goal!) to try to calm down the nausea.

    I'm taking more probiotics, hoping it will help! If not...I see my surgeon soon....but I hope I will feel better before Thursday!
  17. Christie13's Avatar
    Oh my goodness. That really stinks. I only had minor issues with raw veggies in the beginning. Now I can pretty much eat anything with no issues. I only have issues if I overeat.
  18. Sandra3's Avatar
    Quote Originally Posted by Aydensmomma
    Take it slow, don't get to the point where your guaranteed to regret doing to much. A little at a time. Do not worry about the gained weight. It will go away once things get to normal. Just concentrate on the days and dont worry about the tomorrows ;-)
    Hi Teri!

    Thanks for your message!
    I do try to be careful. Last week I did commute twice to Paris, was exhausted and in pain the day after. So I didn't do much until two days ago, I felt better and decided to scrub the kitchen. I was in pain again, so resting today.

    If it was only the regain from the Surgery in March I wouldn't mind, but I was taking prednisone from October to February and already gained a lot. I stopped it two weeks before surgery, saw my weight going slowly down, then bam, surgery with a weight gain bonus!
    So it's starting to really add up!

    I see my bariatric surgeon for the stomach repair next week, we will schedule the surgery for May. I will probably gain with that one too. Meds mess up with my hormones big time!

    I's just a lot of step back, and my joints and back start to hurt!

    I know I will be able to lose that weight without too much issue because it's "only there since October" and not +20 years, but any weight gain is a real bummer..
  19. Aydensmomma's Avatar
    Take it slow, don't get to the point where your guaranteed to regret doing to much. A little at a time. Do not worry about the gained weight. It will go away once things get to normal. Just concentrate on the days and dont worry about the tomorrows ;-)
  20. Sandra3's Avatar
    Thank you Stacey!!
    I hope I will be able to lose a bunch of kilos before the next surgery, it will help the process!

    I was really undecided for a while (because it was again an other major surgery) but the specialist did think in my case, since I had so many issues linked to that one, and the fact that I will get a job overseas this Summer or the following, it was too risky to try the conservative approach, since I don't know what country it will be...it could be a place where they wouldn't be equipped to treat me in case of an emergency..I also do trust his judgment. He is a very good doctor (not so many of those out there!)

    But so many months being sick feels like getting into one fight after the other!! at least that part is behind me now...

    Tomorrow I see the "work doctor" since HR need confirmation I would be able to work overseas in September.....I'm exhausted from meeting all those doctors...
  21. Stacey03's Avatar
    Sounds like you made the right decision Sandra, you will get there. You are superwoman at having it under control. Best wishes for the next operation :-)
  22. Sandra3's Avatar
    Quote Originally Posted by DutchSleeve
    That sounds great Sandra!
    Finally some good news!
    I wish you a very speedy recovery.
    You will loos those extra pounds very quickly, once you stop your meds.
    Are you still on antibiotics?
    Thank you dear Simonne!

    I took my last (4th) round of antibiotics in November, that did activate a flare of IBS, I had to stay away from fibers/veggies for a while, and take lots of probiotics to regain "normality" in that area.

    But the main issue was the cortisone I took from October to February, never took it for that long before.
    It does always mess up my hormones big time.That was the main cause for the huge regain, that and the stress/lack of sleep, since it has the same effect on cortisol hormones.

    I came back with a big gain from the hospital on March 2nd (like for the sleeve) so I'm guessing it's from the anesthesia and/or the anti nausea meds (plus I had cortisone right before the surgery to avoid bronco spasm)...so who knows...but I know anesthesia has always had that effect on me..

    Plus the first week post op I was not eating much, way under my BMR for sure (I did track my food intake) but I only started to eliminate part of the last 6 kgs from week 2 when I was eating a little more.

    Funny thing is I could actually smell the meds on my skin until last week...those chemicals are so powerful!

    Anyway...yesterday was a good day! we were all concerned by the pathology report, so it was a big relieve that at the end I had no major issue.
    But from now on I will know that MRI are not 100% reliable...
  23. Dutchie's Avatar
    That sounds great Sandra!
    Finally some good news!
    I wish you a very speedy recovery.
    You will loos those extra pounds very quickly, once you stop your meds.
    Are you still on antibiotics?
  24. Sandra3's Avatar
    Quote Originally Posted by Tamera2
    Glad your first surgery went well. What kind of stomach surgery do you need? Iíve had four surgeries from November thru january. I also have problems with adhesions and make each abdominal surgery take longer. Hang in there. It will make your next surgery possibly easier to recover because youíll be stronger. It was a big difference with three on top of each other and then waiting a month for the last one. Good luck and donít over due. Hopefully You got some safe exercises to start with if not walking and stationary bike are good. Hope your recovery goes well and your next surgery goes good too.
    Hi Tamera,
    I did read about your complications, that's so unfortunate!

    My story is a little different, but to make it short, suddenly my bleedings got worth and worth since last Summer (I do have issues for years) but then my immune system took a turned for the worth since my anemia was so bad. So from several infections, then lung infection, my asthma started to be out of control. I had a very bad week of uncontrolled asthma, then awful chest pain and the scan did show a hiatal hernia. So much pressure in my abdomen did push half my stomach into my lung cavity!
    Anyway, I sent an email to my surgeon in Taiwan, he told me I had two options, go for a bypass, or try a repair if the hernia was big. Since my hernia has been measured at 4 cms, it's on the large size, and we know now where my chest pain is coming, the staples are also scratching the hiatus, because my hernia is a "bad kind" the one that slides.
    So I finally found the right surgeon here in Paris to do the repair, it's called a Hill Gastropexy. Not many people know how to do it, and the first surgeon I saw was only offering the bypass (but anyway I didn't like her).
    I wish I could have gone back to Taiwan for my repair, but since I'm not working there any more my insurance would not cover for it...and with a kid in college...counting pennies...

    In France unless if it's a life and death reason they would never do a surgery one month after the first one. But at first I was not supposed to have an hysterectomy but an other procedure to scrap the inside of the uterus. That one would have been quick and almost painless, and I could have had the stomach surgery one month after because that first GA would have been only 20 mns. But the professor I saw said it wouldn't be efficient and said the hysterectomy was the only way because we couldn't take any more risks, and I was too sick because of the bleedings.
    But for this one GA was +3h, so the stomach will have to wait at least 2 months in between...
    My asthma was bad from October to February, so we also had to wait for the asthma treatment to work...my lungs had to be stable enough.

    Anyway...one done....one to go!

    Real exercise is out of question until my first post op (only allowed to walk, and not get tired doing it), and I'm supposed to be really careful after, I will see a special coach at the hospital probably in June (at my first post-op for the stomach) to know exactly what I can do. But my stationary bike will continue to host dust, I can't use it...
  25. Tamera2's Avatar
    Glad your first surgery went well. What kind of stomach surgery do you need? I’ve had four surgeries from November thru january. I also have problems with adhesions and make each abdominal surgery take longer. Hang in there. It will make your next surgery possibly easier to recover because you’ll be stronger. It was a big difference with three on top of each other and then waiting a month for the last one. Good luck and don’t over due. Hopefully You got some safe exercises to start with if not walking and stationary bike are good. Hope your recovery goes well and your next surgery goes good too.
  26. Sandra3's Avatar
    Quote Originally Posted by KiwiGal
    Glad this first part is over for you. Surgery is never much fun but how interesting that a robot was used! Great that there was VIP treatment for you .

    Don't overdo things. Look after yourself x
    Thank you for your message! And no worries, my feet are up and I take it easy. Do my little walks, drink my little tea...the gas pain is slowly improving.

    The robot was an option the surgeon offered. He is well known to be talented and usually does most his surgeries for complex cancer related issues.

    I actually picked him because he has more experience in difficult surgeries and since my case was complicated with all adhesion's all over my abdomen(for example my uterus was glued to my bladder) he wanted to use the robot because it gives him a 3D view, and more precision in the cutting, we knew from the beginning it was going to be long and tricky.
    Plus when the robot is used it's supposed to be less painful for the patient, and give less bleeding and better recovery.

    I didn't think about it for a long time because I did read several papers about " Da Vinci" and it seemed it was the best choice in my case. He actually didn't tell me I was "the first" to get that specific surgery with the robot ...
    probably afraid I would say no if I knew!

    But overall I'm so far really happy about my choice!

    I'm also very happy this is over!! I only wished they could have done the stomach repair at the same time! and I did ask...but both surgeons said it was too risky because one surgery was already 3 hours and combining both would be too long and would put too much stress on my body....argh! I will have to "rejump" the same hoops in about two months...
  27. KiwiGal's Avatar
    Glad this first part is over for you. Surgery is never much fun but how interesting that a robot was used! Great that there was VIP treatment for you .

    Don't overdo things. Look after yourself x
  28. Sandra3's Avatar
    Quote Originally Posted by AnnieG
    Bless your heart! Lots of positive thoughts and prayers for accurate diagnosis and expedient scheduling of treatments. And peace for your husband's state of mind.

    So glad you have a good work situation; and insurance.
    Thank you Annie for your support!

    I know I'm lucky with work and (national) insurance. I do pay extra for a premium and it has been useful because, even if I have been waiting for months to have surgery, it could have been much worth.

    One of the test I couldn't have during my one week in hospital was schedule for April, I just went private, my private insurance did refund me most of it. I thought I had jump all the hoops...but no....more waiting!!

    Anyway, getting ready for my day at the hospital...I'll keep you posted!
  29. AnnieG's Avatar
    Bless your heart! Lots of positive thoughts and prayers for accurate diagnosis and expedient scheduling of treatments. And peace for your husband's state of mind.

    So glad you have a good work situation; and insurance.
  30. Sandra3's Avatar
    Yes..."going nowhere" is exactly describing the situation.

    I saw the surgeon in December, from what he said at that time surgery would be in January, after all the tests. But in between, a surgeon left at the (public=not well organized) hospital, so now my surgeon has to take most his patients, and his agenda is now completely overbooked.

    At some point, I was so desperate I was considering going back to Taiwan to have my surgeon there do the surgery, but it would be really complicated since the technical difficulties post-sleeve make impossible most repairs (he would only be able to do a bypass) plus the financial impact would be too big (I just paid the kids tuitions, one in private school in France, the other one overseas at uni) not the right year for that kind of spending.

    The past weeks have been hard, but at least my asthma seems to get better those past days.
    We just take it one day at a time.
    My husband is the one who's the most stressed by the situation, the kids seem ok, I'm always communicating with them, the youngest had questions at some point, she was worried when she saw me having so many asthma attacks which is very unusual, but she got her answers and was fine.

    For work, I was lucky I changed Department in September, and even more lucky, the person I was supposed to replace has not left yet since HR messed up her assignment, she will only be gone in July.
    So I asked my boss to give me different projects in the mean time. The dealines are still very far away, but I know that a few people needed my expertise those past weeks, so some of the files are just stopped for the moment. Lucky again, there is nothing urgent, just work piling up.

    Thank you for your good wishes!! very badly needed!! my health issues had so many consequences....I just hope this week we'll be able to plan the surgery date and be over with it. My pneumologist thinks surgery should be ok now...
    Tomorrow I see a professor, I know he met several specialists last week to debate my case, we'll see what the result is..
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